Hey everyone, I have recently had this fabulous idea that I am really excited about. I have been talking with a few girls and young women from around New Zealand who have been diagnosed with endometriosis and are feeling really isolated and alone. They really want someone to talk to, about their age, who knows exactly what they are going through. Someone who knows what it’s like to live everyday with this cruel disease.
I am calling all teenagers and young women though out New Zealand who want to be involved with a national YES (Young Endometriosis Supporters) group to be a contact person for teens and young women who may be struggling in your area, to abolish all those old school thoughts of ‘get on with it, we did’, and to create a national young voice speaking out about how this disease impacts on your life.
How do you get involved? If you feel like you are in a well space, have good communication skills, describe yourself as a fun person, have the ability to reach others, and want to make a difference, I would love to hear from you. So if you feel like you have all the skills necessary to be a spokesperson for your area all you need to do is email me ehavell@xtra.co.nz. The scope of this is endless and may result in lobbying to government or talking with health professionals, it is ours for us to create into what ever we want, to fill whatever the need is for young people in this country!
Please make a comment under this blog if you think we need something like YES. If you think you would benefit, or would have benefited from having someone your age to chat to? I would love to hear what you have to say…..
Elaena x
heya, ive only found out i have endo for about a month since having sergry.. although its nice to have a name for it and all i do still feel alone.. im not sure if id be a spokesperson as i dont know enough but id love to see what happens..
good luck
Posted by: jade bekkers | October 20, 2008 at 11:31 PM
Hey, thanks so much for your comment. It can be really hard to just get out of bed let alone come to terms with a diagnosis, so I totally understand that you might still be feeling alone. I guess that's why ENZ set up the website and blog so you have access to stories from other young women with endometriosis. You don't have to be a spokes person to be involved, so if you would like me to add you to our database to keep you up to date with stuff that is happening around the country I would love to do that for you.
Elaena x
Posted by: Elaena Havell | October 21, 2008 at 02:16 PM
Hi
I Havent Been Diagnosed with anything but i think i might have Endo.
ive Have chronic period pain for about the past year and i havent really done research untill now because i just thought ya know everyone gets it.
but i cant get out of bed, im always tired and im always so close to crying its not funny.
i went to my doctor about it and she just gave me the pill, but if anything it made me feel more upset and tired.
and i guess im writng this big thing because u noticed at the start of your blog you said you talked to young people who have it.
and yeah i guess by now you get the jist of my comment.
so i was wondering if at any time i could just chat. :]
thanks
Hannah
Posted by: Hannah | November 17, 2008 at 12:23 AM
Hi Hannah
where abouts are you based? i'm in auckland if you are up this way. I met Elaena yesterday and she is fantastic such a great person :o)
my advise Hannah ... if the pill your on doesnt work for you go back and ask for another, for me i tried 3 or 4 and Yasmin was the best, but it is more expensive.
SJ xo
Posted by: SJ Chamberlain | February 14, 2009 at 10:51 PM
hi there my name is kylie and in from taranaki. i have been told i have endo from my doc and i am having scans/test next month to see how bad it is. i would love to talkt o sumone round my area,
Posted by: Kylie Cresswell | January 28, 2010 at 11:58 PM