Endometriosis New Zealand has been named Flossie's charity of choice for 2009, which means thanks to all your votes we won the competition! For endometriosis in New Zealand winning this competition means the ability to increase outreach and to raise the awareness and profile of this devastating disease. Thanks again so much for your support! Will keep you all updated with media releases and exciting things that will come from this partnership.
Love the team at ENZ xx
Flossie.com, New Zealand’s largest women’s on-line portal is running an initiative where ENZ could win an amazing 12 month support package including: a
By going on-line to Flossie.com, registering and nominating us, you will enter the draw to win a trip for two to Nadi (Fiji) plus VIP transfers to the Hilton in a luxury car. You’ll stay for five nights in a spacious suite on the beachfront, enjoying delicious breakfast, lunches and dinners for two each day!
Endometriosis, mate kirikōpū, doesn’t discriminate affecting tens of thousands of girls and women in New Zealand alone, some as young as 10.
We are constantly reminded of the current severe downturn in the economic climate and that we must downsize! Sadly endometriosis is not in recession, in fact quite the opposite! What is important for New Zealand at this time is to support our own people. These are our girls and our women and we need to protect our workforce - for endometriosis costs us millions each year in lost days off school and work.
Endometriosis is too prevalent, too debilitating and devastating, and too silent. Break the silence and support us. Take a peek at www.me.school.nz
Endometriosis is chronic but it will take you only a couple of minutes to vote and to send this to all your family, friends, and work colleagues!
Go online to http://www.flossie.com/competitions/win-a-trip-for-two-to-fiji/ and vote for us on Flossie.com now!
So here's what’s has been happening...For thepast few weeks Si and Gary (More FM Canterbury) have been talking about endometriosis on air and about the idea ofposing nude for a portrait, which would be then auctioned off and the money raise would go to ENZ. However, they couldn't decide who would be the 'lucky' person chosen, so Si decided a paintball shoot out would be the most manly way to solve the dilemma. This is really funny check out the clip on youtube from the paintball shoot out http://www.youtube.com/watch?v=QuuBsW8eHQs and check out the portrait and other photos on the More FM website http://canterbury.morefm.co.nz/BreakfastwithSiandGary/tabid/196/Default.aspx. The protrait is for sale so send the links to your friends. It's so fantastic that they have got behind this deserving cause for all of you!!
A fabulous High Tea event is going to be held at the Heritage Auckland February 15, 2009. High Tea is an old British tradition and an occasion that has been enjoyed by many women, young and old, across the decades.
It is a chance to 'play ladies' and enjoy a lovely afternoon to raise money for this well deserved cause. All money raised at the High Tea will go towards the 'all about me' programme, which encompasses education, awareness, and support.
For more details about the High Tea please check out the attached document and to buy tickets simply click on the link below
Download 'all about me' High Tea1
http://www.fundraiseonline.co.nz/fundraise/ticketevent.asp?id=405
Hey everyone, I have recently had this fabulous idea that I am really excited about. I have been talking with a few girls and young women from around New Zealand who have been diagnosed with endometriosis and are feeling really isolated and alone. They really want someone to talk to, about their age, who knows exactly what they are going through. Someone who knows what it’s like to live everyday with this cruel disease.
I am calling all teenagers and young women though out New Zealand who want to be involved with a national YES (Young Endometriosis Supporters) group to be a contact person for teens and young women who may be struggling in your area, to abolish all those old school thoughts of ‘get on with it, we did’, and to create a national young voice speaking out about how this disease impacts on your life.
How do you get involved? If you feel like you are in a well space, have good communication skills, describe yourself as a fun person, have the ability to reach others, and want to make a difference, I would love to hear from you. So if you feel like you have all the skills necessary to be a spokesperson for your area all you need to do is email me ehavell@xtra.co.nz. The scope of this is endless and may result in lobbying to government or talking with health professionals, it is ours for us to create into what ever we want, to fill whatever the need is for young people in this country!
Please make a comment under this blog if you think we need something like YES. If you think you would benefit, or would have benefited from having someone your age to chat to? I would love to hear what you have to say…..
Elaena x
My name is Michelle (this isn't a photo of me!). I was diagnosed with endometriosis in October 2006. I began my periods in December 2005 and had chronic pain from day one. My health before I was diagnosed was not good either. I have had numerous admissions to hospital for bladder, kidney and bowel related problems after being diagnosed with endometriosis one of the Doctors wondered if all my other problems could have being related to it.
At times I fell very alone stuck in my room and bed with my pain living on strong pain relief. My mum does what she can to help but it’s not like having someone who knows what its like to have this disease.
Elaena at Endometriosis New Zealand was fantastic and after asking if she could put me in touch with someone of a similar age, I meet Alice. We hit it off immediately sharing our stories and realising I wasn’t alone in how I was feeling. It helped me to talk to someone of my own age, not another adult.
I really hope the me program makes it to the North Island as girls really need to know if they're off school for a week in severe pain they need to see a Doctor as it’s not normal. They also need to know there are a lot of girls out there with endometriosis and they are not alone. If the ‘me’ program had been in Wellington when I was diagnosed, I would have really felt heaps better knowing what endometriosis was and that a lot of girls have it in my age group.
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